This is Carmen when she is around four years old.
We talked to the doctor today. We saw Carmen's scan. It was pretty shocking. She has about ten different tumors in her brain, and a collection of metastases at the bottom of her spine. Her Doctor is shocked also. He is also shocked that she is so comfortable. We are so grateful for that. He tells us she has weeks to maybe a couple months to live. He is offering a phase two trial as our best hope of prolonging her life. He says this may buy us a couple more months. I am torn at this point as to what to do. Carmen wants to fight. My only concern is that she is going to be miserable. A phase two trial is a treatment that is not totally brand new, but has only been tested on a few patients. This particular one would have a drug that would inhibit blood vessel growth coupled with a chemo drug that she has not tried yet. Reed and I are going to pray and look at all our options including the phase one trials (brand new never been tested), which the doctor does not recommend, and hopefully have a decision made by the end of this week.
Thank you to all of you for fixing up my house, and restocking my cupboards. It was fun to come home to. We are not overloaded with visitors, so anyone who would like to come visit is welcome to.
We know God is watching over us. Carmen is wiser than most adults. She is comfortable and happy still and still looks forward to her future. Carmen says she is learning courage. We love her very much.