This is a picture of Carmen when she was about three. She is dressed up as Mary.
This week has been hard. We have gone back to wearing pull-ups and using the wheelchair. In the beginning of the week she had pain that would wake her in the middle of the night. That has gone away. Thank goodness. All through the week we have had trouble controlling her nausea. She was responding well to Zofran at first, but now nothing seems to be helping. She has good moments throughout the day, but every day is a pretty big challenge for her. She has lost her strength and Reed and I carry her if she needs to go somewhere. We are so happy for the good moments we have every day! She is a strong girl and never complains about this happening to her, and never asks "why me?". Even when she is at her worst, she seems to understand that this is a part of her life, and only complains about the pain that sometimes hits her. We will have an MRI sometime this week, to see if the tumor has grown or shrunk. Her blood test last week looked great, and she will have another one tomorrow. Thank you for all your prayers. We know this would be much harder without them. We know God is watching over Carmen.